Fragile X research is seriously underfunded.
In 1997, a group of parents and professionals decided to do something about it.
Understanding both the suffering that Fragile X syndrome can cause and, more importantly, the many reasons for optimism and hope through advances in research, they founded the Fragile X Research Foundation of Canada (FXRFC).
- FXRFC is a national non-profit, tax-exempt organization administered by volunteers, all of whom are parents and health professionals.
- FXRFC directly funds promising research aimed at treatment. Applications for research grants and postdoctoral fellowships are accepted on an ongoing basis and reviewed annually.
- FXRFC promotes awareness of Fragile X. We publish a quarterly newsletter and information materials. We also hold fundraising events and organize parent advocacy groups across Canada.
- FXRFC has established a Fragile X Clinic at Surrey Place Centre in Toronto. It is the first dedicated Fragile X Clinic in Canada and is a member of the North American Clinic Consortium.